We are so happy and thankful Landen was able to get his cast off last Tuesday!! Yay!! While we were in Wilmington, DE he had a 6 month follow up with the geneticist, Dr. Bober, he got the cast off and while he was under anesthesia for the cast to be removed he also had a MRA/MRI of his brain. He got a great report from Dr. Bober! Landen seems to be doing really well! The MRA/MRI was done to check for any possible vascular problems. The results will be back in about 2 weeks. We are also still waiting on DNA results. They were sent off in December but could take up to a year to come back. Those results along with the MRA/MRI results will hopefully give a better definition to Landen's diagnosis. Right now his diagnosis is MPD (Microcephalic Primordial Dwarfism) not otherwise classified.
Landen is wearing a brace that goes around his waist and the top of his thighs. He will wear this for 4-6 weeks but it is so much better than the cast! We can take it off to change his diaper and give him a bath but other than that he has to wear it all the time. We are so glad that he no longer needs 2 diapers and he can actually wear pants! :) He is doing really well getting adjusted to it. He moves a little slower right now but it won't be long and he'll have it all figured out!
Well that's all for now. Luke is going to the doctor this afternoon for the colonoscopy results. Please keep us in your prayers.
2 comments:
Oh my..what CUTE lil boys!! I love those pictures and their smiles!! :) Love you guys and am praying for you all this afternoon!! :)
The future Mrs. Huff?? LOL? Thank you so much! We love you!
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