Tuesday, May 30, 2017
Transplant - Day Seven
It was really nice for Landen not to have to get a shot first thing this morning and to not have to be hooked up to monitors for 6 hours. At first, I thought that was just for the first day of Campath but it wasn't. After his shot every morning he would have to be hooked up for vital signs to be checked every 30 minutes for 6 hours. He still has to take pre-meds today and tomorrow and then he will be done with those. Last night I noticed the warts on his fingers (which surprisingly was a big warning sign that it was time for the transplant) were starting to look worse. Dr. Roehrs asked about them this morning and said that they would probably get worse before they get better. Landen's blood work is good for today but he will probably need a platelet transfusion in a few days. For the past several months Landen has been taking Bactrim three times a week. We were able to stop that right before we came to the hospital but we knew they would replace it during transplant. The doctor told us today that they plan to give it through a breathing treatment, which he has had before, and he will do that once every three to four weeks. He had it done today and he had to go to another room for the treatment but I'm sure he didn't mind that one bit! ;-) It went well but it had a bad taste. The dressing on his PICC line had to be changed today. Landen hates dressing changes...the tape being pulled from his skin and the stitches around the line hurt pretty bad. It didn't go well today at all. It is heartbreaking to know he is in so much pain but the dressing has to be changed once a week. Hopefully, it will get a lot easier for him. Landen had a lot of visitors today! Nani brought Brayden and Hannah Grace this afternoon. Julie and Emma, Makia and Fay, and Alex and Wanda also came! Brayden is spending the night with us which will be good for all of us! Although Landen is in really good spirits I think visitors really help our social butterfly! ;-) It was a great, but busy day!
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